This View from the CLOUD was originally sparked by a much appreciated spot by Liza Bernstein and Susannah Fox’s kind invitation to make a comment at her blog, based on the original article, “Sure, Big Data is Great. But So is Intuition,” by Steve Lohr in the New York Times just before the New Year. Take a peek at both the article and Susannah’s blog. There are a number of excellent comments at Susannah’s blog, taking a number of different perspectives on the topic. Following is CLOUD’s comment, taking a different view, one that goes to the deeper roots of the issue. Like Web 2.0, the challenge with Big Data is it has so many different definitions…
43 years ago, on July 21, Neil Armstrong stepped on to the surface of the moon; 15 years ago tomorrow on LIVESTRONG day, Lance Armstrong was diagnosed with cancer; and 9 years ago this month, my own wife, Maureen, was diagnosed with breast cancer, while pregnant with our now 8.5 year old daughter, Katelyn.
San Francisco… 55 degrees… a vibrant morning for Health 2.0, and I’ve already had some interesting conversations about CLOUD before the program even starts.
On the way over from the hotel on the bus to the San Francisco Concourse and home of Health 2.0, I engaged in an interesting conversation with someone that has worked in health systems as a major contractor, Continue Reading →
The Design Center concourse in San Francisco could not be a better venue for the upcoming Health 2.0 Conference. For all of the debate that is raging about health care, reform, insurance companies and the rest, the issue at hand is really one of design. The theme, User-Generated Healthcare, is itself a design issue.
Places of the Soul, by Christopher Day, makes the point that architecture must begin based on where the designed structure is to be placed. As he notes in the book, studies have shown that there is strong correlation between recovery time at the hospital and patient view, with every leaf being ‘worth its weight in gold.’ Design matters. The Health 2.0 team has architected an excellent agenda that looks at the design issue of the healthcare system from the perspective of the patient. I am excited to be attending and look forward to the possibility of CLOUD presenting its new vision and language during the Human Centered Design Contest.
CLOUD believes that the Internet needs a new design, too, an architecture based on starting from a new place, the individual. ME 1.0 looks forward to meeting Health 2.0 and engaging in a new blueprint for the future!
Advertising Age reports that the FDA will hold hearings on how drug companies use Web 2.0. And just in time, too, as the world marches toward Web 3.0. Don’t tell the FDA, but their regulations could be obsolete if Web users unite behind a new standard that puts individuals — not companies — in charge of their own data. CLOUD has published two papers on the standard as work to move from the Internet corporate Web paradigm to the Internet personal connection paradigm proceeds apace.
Consider this as you watch the FDA’s work in this area: Why limit improving health tools to the Web alone? The Internet’s power to connect people goes far beyond the browser paradigm. Check out CLOUD’s perspective from a higher altitude.
Just over a year ago at the Personal Democracy Forum in NYC, I posted an item to my personal blog at The End of Linearity on this topic, the idea that there are no destinations on the Internet. Having wrestled with this topic for many months, it became clear that the challenge of ‘destination thinking’ from the real world was complicating solutions to topics like health care because it was focusing us on areas other than patients by which to find solutions.
The quest for the holy grail of the electronic health record is particularly difficult because of fundamental disagreements about matters as general as the scope of the “health” domain. What are the proper relationships between records made by examining physicians, diagnostic experts, health insurance companies, parties paying for health insurance, patients themselves, and others? What about schools that require particular vaccination records or physical examinations for athletic participation? Or financial service providers pricing annuities based on actuarial estimates?
This piece by Tevi Troy at the Washington Post highlights key issues that CLOUD can help address as we seek to solve this electronic health record challenge through new vectors and a change in your horizon.